A project to raise money for the cure of Cystic Fibrosis
After a great race at the NYC marathon in November www.runforyourson.com is going North to run the Hamburg marathon. April 29, 2012 is the day of the days into a marathon year 2012. Let´s get another 26…
ContinuePosted by Kai Herzberger on March 20, 2012 at 9:23pm — 1 Comment
Added by Arens
Ole Arens (born on 16 July 2009) has Cystic Fibrosis, a genetic and incurable disease with a limited life expectancy (37 yrs average). Ole´s parents (Arne & Katharina) ran the New York marathon in 2011 together with Ole and a team of 30 friends. Together they raised 60.000 Euro for the Dutch CF foundation to contribute to the search for a cure for the disease. In 2012, they will continue with 'Run for your Son': they will run the New York marathon again and get 100 people together to raise 100.000 Euro around the 'Dam tot Dam' race in Amsterdam on September 23 2012 (16km.).
If you want to support us in finding a cure for CF, please run with us and help us raise money! If you want to run the New York marathon, write us an email at info@runforyourson.com, if you want to join running the 'Dam tot Dam 2012', please sign up here (Dam tot Dam registration).
We will take care of your 'Dam tot Dam starter package' (registration, running outfit, trainingplan). Thank you for joining us!
In essence, CF patients genetically lack a certain protein that ´resolves´ mucus in the body (primarily lungs, intestines and pancreas). Thus, mucus sticks in their body and forms a perfect breeding ground for bacteria. Especially the lungs are vulnerable to infections and pneumonia, which breaks down the lung capacity slowly but surely. CF is currently incurable and has an average life span of 37 years. CF comes in many forms and for Ole it means a strict medical regimen each day (antibiotics, inhalation, nutritional supplements and careful hygiene). And although medical science has made tremendous progress over the last 20 years, there is still no cure.
For more information on Cystic Fibrosis, please visit: the NL Cystic Fibrosis Foundation, the German Cystic Fibrosis Foundation or the US Cystic Fibrosis Foundation
The money raised by the team will be used by the Dutch CF foundation to contribute towards financing 10 coordinators that manage research projects in Dutch hospitals.
If you would like to contact us, please send an email to info@runforyourson.com
For access to our FAQ´s, please click here: RFYS FAQ´s
If you would like to donate directly into the bank account of the Dutch CF Foundation, please use the following account number (reference ´Run for your Son´):
BIC: ABNANL2A
IBAN: NL41ABNA0472459856
ABN AMRO Baarn (NL) 47.24.59.856
© 2012 Created by Arens.